It became an intractable disease about 3 years ago

It was a disease I hadn't heard of, so I searched for it, but it's a painful illness...

I think it's amazing that Miu is trying to accept it little by little.
I usually try to take illness as “something that always happens and there's nothing you can do about it” in Buddhism, but I'm not sure if I can do it at that time.

The difficulty of accepting death from old age sickness is such that no matter how close people are to death from old age sickness, it is so difficult for people to accept that “until now it is unbearable for me to die even though I thought it was someone else's.”

People with an intractable illness often came to pray at my temple.
At first, he was just a person who was just lamenting.
I sat down with my master in front of the Buddha and watched over and over again for days.
Among them, before I knew it, that person began to accept their illness and make positive statements.
It wasn't a theory, etc., and I thought that person prepared his own mind in front of the Buddha.

Being able to have a relationship with Buddhism due to parting ways with illness or death is called a perverse relationship.
Adverse relationships are painful, but they are relationships that can make that person successful. It's precious.

Hopefully, Miu will succeed in accepting the disease one day, and I sincerely hope that someday, the disease will be cured by advanced medicine.

Implementing a carbohydrate-restricted diet
Until now, haven't you ingested a lot of carbohydrates (dietary fiber+carbohydrates) such as rice, bread, and noodles?
Wild animals consume very little sugar. Therefore, it is almost never susceptible to diseases like humans.
Therefore, we recommend shifting your diet to a low-carb diet such as meat, butter, cheese, mayonnaise, and leafy vegetables.
Basically, you don't need to worry about the amount of salt at all.
However, those with kidney disease should refrain from salt intake.

Do you know the Five Elements (Thursday, Fire, Earth, Gold)?
Each has a conflicting relationship, and if one of them becomes stronger, the opposing one weakens, and by weakening, the opposing one also has the effect of losing strength.
By acting in a well-balanced manner, the body and mind work in a well-balanced manner, we are gradually moving towards improvement.

Calm your mind and increase your will to heal your illness. Let's review our eating habits and try to improve our constitution. If you have a good balance between your mind and body, you will always be able to see the light.

Miu-sama

This is Kawaguchi Hidetoshi. This is my humble answer to the question.

SLE (systemic lupus erythematosus)... I didn't know, and I looked it up on the internet for a bit... it's really painful...

It's going to be an intractable disease related to the autoimmune system...

In Buddhism, I will explain that there is always a causal relationship (cause and condition) between things and things.

Although it probably had a cause or predisposition, it did not become apparent for a while, but I think it may have developed due to overlapping triggers of some kind of condition (allergy reasons, infectious diseases, changes in hormonal balance, etc.)...

Once it is clear what caused the cause or condition, I know that treatment/improvement, or overcome/cure is possible by changing the cause and condition.

It seems that steroid administration is essential as an effective treatment... I know it can be painful due to side effects...

Please don't overdo it now, don't be bothered, and be asked for help and support from those around you.

And don't ever give up.

Don't be misled by the words “intractable disease” or “unknown cause.”

By changing the causal relationship to a better one, we will surely be able to hope for better results.

Naturally, the relationship of trust with the attending physician who is the doctor should be placed first and foremost, not to mention studying, gathering information, and analysis about diseases, receiving second opinions if necessary, or being asked for advanced research/medical information from overseas, and receiving advice through peer counseling etc. with people with the same illness, with a strong determination that they will definitely, positively, and always cure them for the better, so don't give up I would like you to team up.

Seizing happiness is also largely up to you. I sincerely pray for improvement, healing, and happiness by coordinating better causes and relationships.

Kawaguchi Hidetoshi Gassho

　systemic lupus erythematosus (SLE). I heard it for the first time.

As medicine progresses, new names of diseases that were previously unknown will increase. It was over 30 years ago, and I was admitted to a university hospital several times due to an illness where the optic nerve becomes inflamed and eyesight disappears, but I was talking about the names of diseases with people in the same room, and I learned that there are quite a few intractable diseases that I hear for the first time just the name of the ophthalmology disease. My illness was “steroids for the time being,” but there are quite a few people suffering from illnesses for which no treatment has been established. Whether I said the name of the disease or told them the condition, it seemed painful that they couldn't easily understand it.
I think the inside of “Miu”'s heart is probably the same. I know it's going to be a very difficult day. In order to reduce the possibility of developing symptoms, we hope that you will spend every day peacefully without accumulating stress and being careful about eating habits.

As for someone close to me, I found out about 15 years ago that I was infected with Hepatitis C. I've never had surgery or blood transfusions, so the possibility to think about is a boyhood vaccination (reusing the same syringe was commonplace at the time). Since the infection became known, the person himself has been living an uneasy day while going to the university hospital on a regular basis. Interferon treatment was recommended by doctors about 7 years ago, saying “because I'm worried about getting liver cirrhosis.” Since it is a treatment that makes you bedridden for months, I was quite hesitant, but a new drug called “Harbone” was approved last year, and it began to be used for hepatitis treatment.
My relatives also started taking this medication in November of last year, and it seems that the hepatitis virus was no longer detected even when tested because the medicine worked. I was relieved of anxiety about cirrhosis and liver cancer. I was grateful for advances in medicine.

It cannot be asserted that all intractable diseases can be treated, but I think the number of “curable diseases” will increase due to advances in medicine. Please don't give up hope, take care to get in shape and suppress the onset of the disease.